Join us for our second annual Adalynn Strong πππππ ππππππ ππ presented by BAM Weather!
A fun timed run and walk to raise awareness and funds for pediatric cancer research in honor of Addie Mae! πaturday, May 17 ππ 9 ππ, race will start at 10:30! This will be a true community event! Run, Walk, enjoy live music, have fun! Everyone is welcome! Help us make a huge π°π΄π·π¨πͺπ». π
There will be pizza from Greeks Pizzeria and Tapp Room, treats from Stina's Sweets, and Kona Ice will be available for purchase!
Music by
Adult Timed 5k - $30
Youth (Ages 10 and under) Timed 5k - $20
Adult Timed 1 Mile Runner/Walker - $25
Youth (Ages 10 and under) Timed 1 Mile Runner/Walker - $15
Virtual - $35 (includes event t-shirt, medal, and shipping cost)
Dogs - $5
All registrations include a t-shirt. Register by April 1st to be guaranteed a shirt size.
Fundraisers will be competing to raise the most money for pediatric cancer research through The Cure Starts Now. Please note, in order to join a fundraising team you must first create an individual fundraising page.
Creating a fundraiser does not register you for the race. To register, click here.
If your fundraiser reaches any of the below goals, the creator of the fundraiser will receive these prizes! Any fundraisers that reach a goal of $1,000 or more will be contacted by a staff member to discuss an additional incentive of a banner.
Fundraising prizes must be picked up the day of the event unless you sign up for virtual registration. Levels are cumulative up to one of each item for each tier raised. We reserve the right to make substitutions based on item availability. For more sweet merch to show off your support be sure to visit the merchandise tent on race day!
Meet my little Addie MaeβDIPG Hero! βοΈ
Addie was diagnosed with DIPG-a βrareβ inoperable brain tumor July 22, 2020. She was a perfect little 3 year old. She started to have a slight head tilt I noticed and was soon after diagnosed at Riley Childrenβs Hospital. That day, we were told we likely had 6 months left with our sweet girl and that there was no cure for this cancer. The tumor location in the brain stem, made it inoperable and incurable. We immediately packed up and headed to Cincinnati Childrenβs Hospital where Addie started treatment and her first clinical trial completely funded by The Cure Starts NowβPTC596 which was a BMI inhibitor used to enhance radiation. One word. ππππ.
She had 30 rounds of sedated radiation. Her tumor originally shrunk by 33%. We moved back home on cloud 9. Around November we started noticing symptoms again, and Addie was diagnosed with hydrocephalus and had emergency shunt surgery December 31st. January 7th, 2021 our lives were again turned upside down when Adalynn had her MRI and was diagnosed with Leptomeningeal disease throughout her brain and spine. The symptoms were so awful and came on so quickβwe had to act fast. She then got 12 more rounds of sedated craniospinal radiation, started Avastin infusions, and a chemo combination therapy via compassionate use Everolimus + Ribociclib. We were originally told we likely had weeks left with Addie after that new diagnosis, but she continued proving all odds and fought valiantly until she traded in her cape for her angel wings May 13th, 2021.
She donated her whole brain to research to hopefully end this horrible disease once and for all.
She was so giving, and I have no doubt she didnβt do this all for us-and future diagnosed kids.
Her brain is currently being used in a study she participated in at the beginning of her journey. Incredible things are happening still because of this hero.
This is why I fundraise. This is why I started a Chapter with CSN. Addie Mae fought for us, thank you for continuing to fight for her. ππ€π»
Interested in becoming a sponsor?
Download the form Make a payment
Or reach out to us!
Sponsor inquiries:Β
Bret Walts | [email protected]
Event inquiries:
Kate Jessen | [email protected]
Race inquiries:Β
Makaela Rader | [email protected]
Check out our amazing vendors on the day of the race! All of our vendors will be generously donating a percentage of proceeds back to the Adalynn Strong Chapter of The Cure Starts Now. Your guilty pleasure won't feel so guilty with part of your purchase going towards a great cause! πβ¨
Greeks Pizzeria and Tapp Room | Stina's Sweets | Kona Ice