Adalynn Strong's Storm Cancer 5k | The Cure Starts Now

Presented by

DriveHubler.com Amphitheater at Youngs Creek Park

237 W Monroe Street

Franklin, IN

June 2, 2024

8:30am - Registration opens

9:30 - Race begins

A Benefit For...

The Cure Starts Now

Event Details

Join us for our first annual Adalynn Strong 𝐒𝐓𝐎𝐑𝐌 𝐂𝐀𝐍𝐂𝐄𝐑 𝟓𝐊, presented by BAM Weather!
A fun timed run and walk to raise awareness and funds for pediatric cancer research in honor of Addie Mae! 𝐒𝐮𝐧𝐝𝐚𝐲, 𝐉𝐮𝐧𝐞 𝟐 𝐚𝐭 𝟖:𝟑𝟎 𝐀𝐌, race will start at 9:30! This will be a true community event! Raffle baskets, Kona Ice, Tie-Dye with KICIT, Bead Bar with the Sweat Shop, Hometown Nutrition custom 𝐒𝐓𝐎𝐑𝐌 𝐂𝐀𝐍𝐂𝐄𝐑 drinks, photo booth, face painting, Adalynn Strong t-shirts, and medals! Run, Walk, have fun! Everyone is welcome! Help us make a huge 𝑰𝑴𝑷𝑨𝑪𝑻. 🌈

Registration

Adult - $30
Youth - $20
Untimed 1 mile walker - $25
Virtual - $35 (includes shipping cost for shirt)

All registrations include a t-shirt. Register by May 15th to be guaranteed a shirt size.

Fundraise for this event

Fundraisers will be competing to raise the most money for pediatric cancer research through The Cure Starts Now. Please note, in order to join a fundraising team you must first create an individual fundraising page.
Creating a fundraiser does not register you for the race. To register, click here.

Start Fundraising

Earn Prizes for fundraising!

If your fundraiser reaches any of the below goals, the creator of the fundraiser will receive these prizes! Any fundraisers that reach a goal of $1,000 or more will be contacted by a staff member to discuss an additional incentive of a banner.

Fundraising prizes must be picked up the day of the event unless you sign up for virtual registration. Levels are cumulative up to one of each item for each tier raised. We reserve the right to make substitutions based on item availability. For more sweet merch to show off your support be sure to visit the merchandise tent on race day!

Why We Fight

Meet my little Addie Mae—DIPG Hero! ⭐️

Addie was diagnosed with DIPG-a “rare” inoperable brain tumor July 22, 2020. She was a perfect little 3 year old. She started to have a slight head tilt I noticed and was soon after diagnosed at Riley Children’s Hospital. That day, we were told we likely had 6 months left with our sweet girl and that there was no cure for this cancer. The tumor location in the brain stem, made it inoperable and incurable. We immediately packed up and headed to Cincinnati Children’s Hospital where Addie started treatment and her first clinical trial completely funded by The Cure Starts Now—PTC596 which was a BMI inhibitor used to enhance radiation. One word. 𝐇𝐎𝐏𝐄.

She had 30 rounds of sedated radiation. Her tumor originally shrunk by 33%. We moved back home on cloud 9. Around November we started noticing symptoms again, and Addie was diagnosed with hydrocephalus and had emergency shunt surgery December 31st. January 7th, 2021 our lives were again turned upside down when Adalynn had her MRI and was diagnosed with Leptomeningeal disease throughout her brain and spine. The symptoms were so awful and came on so quick—we had to act fast. She then got 12 more rounds of sedated craniospinal radiation, started Avastin infusions, and a chemo combination therapy via compassionate use Everolimus + Ribociclib. We were originally told we likely had weeks left with Addie after that new diagnosis, but she continued proving all odds and fought valiantly until she traded in her cape for her angel wings May 13th, 2021.

She donated her whole brain to research to hopefully end this horrible disease once and for all.

She was so giving, and I have no doubt she didn’t do this all for us-and future diagnosed kids.

Her brain is currently being used in a study she participated in at the beginning of her journey. Incredible things are happening still because of this hero.

This is why I fundraise. This is why I started a Chapter with CSN. Addie Mae fought for us, thank you for continuing to fight for her. 🌈🤟🏻